Sarah Grace Just Celebrated her 5th Birthday!!
Grace to you and peace from God our Father and the Lord Jesus Christ. I always thank my God as I remember you in my prayers, because I hear about your faith in the Lord Jesus and your love for all the saints... Your love has given me great joy and encouragement, because you, brother, have refreshed the hearts of the saints. Philemon 3-7
Update coming soon. In the meantime check out Sarah's Blog for updates.
Hello Everyone! So far 2011 has been quite eventful for Sarah Grace. Toward the end of January, she was hospitalized with a viral upper respiratory infection and urinary tract infection. After seven days of antibiotics and iv fluids she was home. She was well for a while, then toward the end of March, she had some terrible congestion and vomiting, so back to Johns Hopkins we went for a 5 day stay. She had the rhino virus (aka the common cold), but needed the extra iv fluids to keep her metabolism stable. She is doing much better now and I thank you all for the prayers during those times.
Beginning March 8, Sarah returned to the Specialized Transition Program and Kennedy Krieger for intensive therapy to help with her transition to kindergarten next year. We concentrated on getting her better at using her communication device. During her discharge, I was told that Sarah is the most challenging person they have ever worked with. The challenge is that her motor ability and her cognitive ability are so far apart. So now we are challenged to find a placement for school next year that can meet both her her physical needs and her academic needs while keeping in mind her social and emotional needs. I am praying that we make a good and wise decision for next year and that God will place a team of people that will help Sarah grow and learn. I don’t need people who will scratch their heads and give up. We know Sarah is a huge challenge, so give her the best you’ve got to offer!
We found out that insurance has approved a gait trainer for Sarah. YEAH! I just hope it is here before cheerleading season begins again. Sarah Grace had a great time in cheerleading this year.
Also, pray for me this summer,as I will be Sarah’s main source of therapy. I pray that I will be able to integrate things into our daily lives. I also need to spend some quality time with my other two girls. I am looking for volunteers who would be willing to come and sit with Sarah (not care for her, I will be there to do that) while I get some things done around the house. If you are willing, please email me mygirlskhs@yahoo.com.
Dena (Sarah's mommy) speaks at Towson Town Hall Meeting about Health Care.